Aug 18, 2015

Psssst - just a quick update

Okay, dusting this ol' blog off just once since it's a bit of a momentous occasion. The final component of my reconstruction is complete. I just got my tattoo!


*Sigh* It had to be done.

It only took about 45 minutes or so and I haven't actually seen it yet because it's all bandaged up, but it's there. Didn't really hurt either. (Bonus when your nerves are gone - though there were times where I'm like, "Oh! I seem to have a nerve there! That's not the most pleasant sensation in the world.")

I am dooooone! Well, other than my follow up appointments with my doctors every three freaking months, but no more procedures anyway. Huzzah! 

Let's see - what else can I go into about 2015? 

July 30 marked my one-year anniversary. Woohoo! It was celebrated with bagels at work, a beverage at home, and silent sobbing in bed. Eh - it was a bit emotional. 

Life post-cancer has been okay. I heard many times that life after breast cancer is actually even harder. I never understood that until now. There's paranoia that you have to live with, and when you are easily affected by suggestion, it can make things worse. How do I explain? Oh, the what-if monster! That asshole is constantly around. I think I feel a lymph node and I freak. I have tiny pains in my neck and I freak. I cough and I freak. This does dissipate with time, but time isn't moving as fast as I would like it to in this case. 

It doesn't help that my surgeon scolded me for not having radiation when I saw her back in February. (She seemed to have forgotten that she was recommending me for a clinical trial where I had a 50/50 chance of not getting it anyway.) I was feeling good about things and then she set me into instant anxiety mode. I couldn't sleep for days. I couldn't remember why I had made the decision I did and was sure I had written my own death sentence. Thankfully, after talking to my oncologist, he reassured me that I had gotten the information first, made an informed decision, and it was nothing to lose sleep over. "People tend to throw everything they can at it without worrying about the side effects, and is it really worth it? Who knows what the standard of care in cases like yours will be down the road. I really think you're going to be fine, and if not, we deal with it then." Phew! I love this guy. (I just saw my surgeon again today and she was more pleasant...thankfully.)

Medical bills are another bummer for 2015. We're doing what we can, but what we can isn't what they want. It just makes no sense. I get through this crap and I can't even enjoy life as much as I'd like to because we don't have the money needed since we have to pay for me getting through the crap. It's a circle of ick! Oh, and my insurance decided that the genetic testing I had done is still considered "experimental" so they're not going to pay for it. No biggie - it only cost $7500.

My oncologist was unfortunately correct about weight loss while on tamoxifen. It's almost impossible. I hate it. I feel so fat and old. I'm exercising at the spa at work a couple of times a week, run when the weather allows on the weekends, and cut out almost all refined sugars (I've never eaten so many leafy greens in my life!), but I've only dropped 5 pounds. Nowhere near the 20 I'm hoping to get rid of. Today I learned I have to cut my calories basically in half in order to make any progress. This should be fun. Damn you, metabolism of a 70-year-old!!

I'm still trying to figure out what to do with all of this. I keep trying to think of my "big thing" to help other people, but the ideas I come up with aren't feasible. This crap I went through will not be for nothing, dammit! 

So, yeah, that's where I am now. I know it doesn't sound that great, but this stuff just comes up every once in a while. For the most part, it's life as normal. Work, family, trying to have fun, and all that jazz.

Thanks again for everything. Y'all are the best!  

Okay, blog...back to the vault!



Jan 4, 2015

Bye Bye Box of Sorrow...and Blog

We've had a shoebox in our dining room that we've dubbed the Box of Sorrow. Inside it, you'll find all of the get well cards I received, deflated balloons from my hospital stay, and other various mementos and keepsakes from the carcinoma adventure. Today, I moved it into our closet.

It's been a full year now since I received my diagnosis. I am officially a "survivor" as opposed to a patient. I took the day off on Friday so that I could spend it with my family instead of reliving the prior year's events minute by minute - I'm breaking the cycle. Being in a new year, I'm ready to put it behind me and move on, new and improving.

Okay, I know I'll never put it behind me completely, that's impossible, but it's not going to be the center of my existence. My life won't revolve around treatments and doctor's appointments. What it will revolve around is improvements...for myself, my family, and everyone I can possibly do anything for. I have a few minor side effects from the medication I'll be on for the next 5 years, but it's not really enough to dwell on or center my life around. I'm done being the chick with carcinoma, at least for now...hopefully forever. As my oncologist said, I'm probably cured, but if not and it comes back, we'll deal with it then.

For that reason, this blog is being put away as well. Not banished to the closet, but it's served its purpose and is going to be put to rest. I may pull it out and share it if I think it would benefit someone, but otherwise I'll let it collect dust in the forgotten spaces of the internet.

Thank you all for following me this year and for being so incredibly supportive. I'm usually someone who wants to handle things on my own, but you, my friends, helped me tremendously. I hope the things I wrote here helped you understand things and get you into my head a little bit...hopefully not too much. 😉

I honestly can't thank you enough. For everything.

All the best,
Rebecca

P.S. Keep an eye on Facebook in the coming weeks. I've got some big birthday plans.